About this Job:
General Summary of PositionThe cystic fibrosis nurse program coordinator works collaboratively with physicians and members of the CF care team to provide state of the art comprehensive patient care education and research for patients with cystic fibrosis. The nurse program coordinator is a team leader involved in all aspects of CF care and management.
Primary Duties and Responsibilities
Coordinates intake triage and follow-up for new adult CF patients to the program and new adult CF diagnoses including genetic testing notificationsOversees referral processes and ensures timely evaluation by CF specialists including integration of trainees (e.g. pulmonary fellows & internal medicine residents)Provides direct patient care and education during clinic visits; supports adherence to treatment plans and long-term disease managementServes as a liaison for inpatient-outpatient transitions promoting continuity of care and effective communication across settingsLeads and/or coordinates CF-specific education for healthcare professionals across the institutionDevelops and maintains educational materials and resources for patients families and staff in alignment with CF Foundation guidelinesMentors and supports CF team members in professional development and accountabilityProvides outreach and education to schools community providers and other external stakeholders regarding CF careParticipates in and represent the program at local regional and national educational events including the North American Cystic Fibrosis Conference (NACFC)Organizes the annual CF Family Education Event and promotes CF awareness through community engagement activitiesChampion infection prevention and control practices specific to CF across all care settingsStays current with CF research and assist in integrating new findings into clinical protocols and team educationSupports clinical research activities including patient recruitment and study coordination in compliance with institutional requirementsLeads quality improvement (QI) initiatives in partnership with the CF Center Director using data to identify and address gaps in careCollaborates with other CF centers and the CF Foundation on shared QI projects and interventionsPromotes meaningful involvement of patients and families in center-based initiatives including mentorship and advisory rolesEnsures dissemination of QI data and outcomes to internal and external stakeholdersContributes to the strategic development of the CF program aligned with institutional missions of leadership clinical excellence education and researchRepresents nursing and the CF program in interdisciplinary planning and organizational initiatives Minimal QualificationsEducation- Bachelor's degree Bachelor Science in Nursing required
- Master's degree Masters in Nursing preferred
Experience- 8-10 years Nursing required
- Experience in pulmonary care chronic disease management or pediatric/adult CF care preferred
Licenses and Certifications- RN - Registered Nurse - State Licensure and/or Compact State Licensure Washington DC required
This position has a hiring range of : USD $35.68 - USD $64.71 /Hr.
